Finally,I can breathe
Got the results back ,finally on Joe’s last set of tests.Came back as Glycogen storage Disease.We are so lucky.If it has to be any type of liver disease ,as strange as it sounds.This was the one to get.He has the least invasive,level 9.Which basically means that he will always have a very large liver,will never be able to take part in contact sports.Basically has to make sure he eats every 2-3 hrs to keep his glycogen up because he can’t store it and if he gets the stomache bug to make sure he somehow maintains a constant flow of food or drink items coming in so he won’t have a hyperglycemic siezure.Fially I can Breathe.






April 30, 2009 at 11:25 am
I guess in the end we have to count are blessings that things arent worse, I’m glad you can breathe again.
May 4, 2009 at 11:48 am
PHEW!!!!
May 11, 2009 at 10:05 pm
Thats fantastic news…
Phew i can breathe a little easier