Finally,I can breathe
Wednesday, April 22nd, 2009Got the results back ,finally on Joe’s last set of tests.Came back as Glycogen storage Disease.We are so lucky.If it has to be any type of liver disease ,as strange as it sounds.This was the one to get.He has the least invasive,level 9.Which basically means that he will always have a very large liver,will never be able to take part in contact sports.Basically has to make sure he eats every 2-3 hrs to keep his glycogen up because he can’t store it and if he gets the stomache bug to make sure he somehow maintains a constant flow of food or drink items coming in so he won’t have a hyperglycemic siezure.Fially I can Breathe.






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