mdrane Jr.
For those of you who don’t know my oldest son has Sickle Cell Disease. He has been receiving blood transfusions every 6 weeks since he was 13 months old. The last two nights he has complained of pain in his hands and arms. He so smart…today when he woke up he told me he “wanted to see the real doctor, not the checkup doctor” so he could get some medicine. Implying that he didn’t want to go to his Primary Care Physician in our little town but his Hematologist in the “big” city 25 miles away. Broke my heart but got the point across.
We called and they said “get him in right now” fearing the worst.
His visit went great!! (Other than the pain) They sent us home (they normally do because they know we monitor him really well and I know enough about anatomy and physiology to recognize when/what a problem arises). He is definitely in his first pain crisis but it is moderate. But his blood work was the best it has been since he was 1 (he just turned 4 Monday). He hasn’t had a blood transfusion in three months. The longest he’s gone until now has been 8 weeks. His spleen is completely back down to normal and the doctor even said she was going to follow the program he is on for two other kids that she was debating removing their spleens. He is finally 30 pounds so he can get on real dosages of his medications and we don’t have to get custom mixtures mailed in from special pharmacies. I hate that he is in pain but on the scale of things it could be a lot, lot, lot worse and that is the blessing. He’s sleep right now (Codeine does that) but it will be the first pain free sleep he has had in 2 days!!!
God is good!
October 24, 2008 at 12:59 pm
I’ve learned a lot from this post. Thanks for sharing and I’m glad to know he’s doing well.
You and your wife are a good mom and dad….and doctors, too!! You know how we have to be with kids like ours
October 24, 2008 at 1:01 pm
Takes one to know one Shan…takes one to know one!
October 24, 2008 at 1:12 pm
I am glad that your son is doing better now!
October 24, 2008 at 2:33 pm
Ok, that brought a tear to my eye, and prayer to my heart. I am glad your son is doing better, and I pray for a million more pain free nights for him, and for peace for you and your wife.
October 24, 2008 at 3:03 pm
Amen…
October 24, 2008 at 3:33 pm
I think everyone here is really happy for your son.
October 26, 2008 at 10:36 am
My Brother, my Thoughts and prayers are with you and your family.
I will be supplicating to Elohim for his continued improvement.
Shalom Aki (peace brother)
November 9, 2008 at 7:53 am
My prayers are with you and your little man. I think it’s a blessing that he is so strong and has so much faith in you and your wife. Stay positive and in prayer.
November 13, 2008 at 7:24 am
I wish more parents cared as much about their kids as you do! Keep listening to his needs because (hopefully) he’ll keep telling you what they are!
November 13, 2008 at 7:28 am
You have a very smart and strong little boy. My prayers are with you and your family, and you are right God is good. God bless:)
November 18, 2008 at 6:33 pm
Just read you blog…my heart goes out to you and your family..my cousin has sickle cell anemia. She has beat all odds, she inspires me….your son can, too. Stay strong.
November 25, 2008 at 8:05 pm
Just caught your blog man, your son is blessed to have you guys as parents, and you are blessed to him. I pray that your son and family gains strength as you do.
November 25, 2008 at 8:05 pm
Just caught your blog man, your son is blessed to have you guys as parents, and you are blessed to have him. I pray that your son and family gains strength as you do.
November 25, 2008 at 8:06 pm
Just caught your blog man, your son is blessed to have you guys as parents, and you are blessed to have him. I pray that your son and family gains strength as you do.
November 28, 2008 at 11:15 am
Aw. i’m sorry to hear about your son, but thats great that he is getting better. I pray that everything will be alright for you all! He is a strong little guy
November 28, 2008 at 7:02 pm
I have worked as a medical social worker in the past and I have had close friends with Sickle Cells Disease. I can’t imagine your day to day but I thank you for sharing. I hope you and yours are blessed.
November 30, 2008 at 9:41 pm
God is good! Your son is very lucky to have an attentive dad like you. I will remember your son in my prayers.
December 1, 2008 at 12:49 pm
I know I do not know you but I am glad to see you son is doing a little better. Kids are a blessing and it is tough to see your children go through pain of any type. Keep you head up and stay positive it will rub off on those around you.
December 1, 2008 at 3:35 pm
Man I can’t imagine. I admire your sons and your courage.
December 5, 2008 at 12:18 pm
God is good! You and yours are in my prayers. They are too precious. God bless.
December 5, 2008 at 7:14 pm
I just read about your son and I am glad to hear that his pain has been alleviated. Knowing two very dear and close friends who suffer from the disease, I empathize with you and admire your dedication to your family and surrounding them with a healthy and fit lifestyle. Now, where are more brothers like you?
December 16, 2008 at 8:30 am
I haven’t read blogs in a while but I’m glad that I did, I agree God is good! It warms my soul to know that your son has such a loving father. I will pray for you guys , I have the sickle cell trait. Although I don’t have the same symptoms, my mom has had blood transfusions in the past and she goes through these periods of low iron, blood count and weakness. I wish I could do something. But again, GOD is good and he hears us and watches over us. I hope you have a great, fit, healthy week! God bless. ~JenCan
December 17, 2008 at 11:46 pm
Stay strong brotha! God is with you and yes God is always good! God bless and you and your family are in my prayers
December 20, 2008 at 7:48 am
I had no idea… I usually don’t have time to read many blogs! Your son sounds like he is an amazing young man. He is lucky to have you as a father!
December 23, 2008 at 1:33 pm
this blog puts it all in persepctive. much love.