mdrane Jr.
Friday, October 24th, 2008For those of you who don’t know my oldest son has Sickle Cell Disease. He has been receiving blood transfusions every 6 weeks since he was 13 months old. The last two nights he has complained of pain in his hands and arms. He so smart…today when he woke up he told me he “wanted to see the real doctor, not the checkup doctor” so he could get some medicine. Implying that he didn’t want to go to his Primary Care Physician in our little town but his Hematologist in the “big” city 25 miles away. Broke my heart but got the point across.
We called and they said “get him in right now” fearing the worst.
His visit went great!! (Other than the pain) They sent us home (they normally do because they know we monitor him really well and I know enough about anatomy and physiology to recognize when/what a problem arises). He is definitely in his first pain crisis but it is moderate. But his blood work was the best it has been since he was 1 (he just turned 4 Monday). He hasn’t had a blood transfusion in three months. The longest he’s gone until now has been 8 weeks. His spleen is completely back down to normal and the doctor even said she was going to follow the program he is on for two other kids that she was debating removing their spleens. He is finally 30 pounds so he can get on real dosages of his medications and we don’t have to get custom mixtures mailed in from special pharmacies. I hate that he is in pain but on the scale of things it could be a lot, lot, lot worse and that is the blessing. He’s sleep right now (Codeine does that) but it will be the first pain free sleep he has had in 2 days!!!
God is good!






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